Public Health England’s National End of Life Care Intelligence Network (PHE NEoLCIN) has today published a statement updating on progress towards a new national data collection from specialist palliative care services. The network has also announced publication of the revised national information standard Palliative Care Co-ordination: core content.
Palliative Care Clinical Data Set
PHE’s NEoLCIN has today issued a statement to update specialist palliative care service providers, commissioners, clinicians, patients and the public about progress towards implementation of a new data collection from adult (aged 18 and over) specialist palliative care services in England.
The new data collection is due to start in July 2016 from NHS and non-NHS hospital, hospice and community specialist palliative care services, with full implementation scheduled for April 2017. It is being supported by the development of a new national information standard (SCCI2036).
The purpose of the data collection is to improve outcomes for patients, carers and their families and to support the development of a new specialist palliative care funding model by NHS England.
The statement explains the benefits of the data collection for patients, their families and carers and advises specialist palliative care providers, commissioners and clinicians on what they need to do to start planning for its implementation.
Palliative Care Co-ordination: core content
On 18 September, the Health and Social Care Information Centre published a revised information standard ‘Palliative Care Co-ordination: core content’ previously called ‘End of Life Care Co-ordination: core content’.
The standard aims to improve the co-ordination of care through better communication of people’s wishes and preferences for care at the end of life. It specifies the core content to be held in Electronic Palliative Care Co-ordination Systems (EPaCCS).
The changes were made by PHE and NHS Improving Quality following feedback from implementers, national consultation, national review and the phasing out of the Liverpool Care Pathway. The changes ensure that it continues to meet user needs and remains fit for purpose.
For more information, see the National End of Life Care Intelligence Network website.