New additions to the RCGP COVID-19 Resource Hub
Illustrated guides to support families and carers of people with learning disabilities
Two guides about coronavirus
New report: Older people who died in hospital (England 2017)
The National End of Life Care Intelligence Network has published a new report
National End of Life Intelligence Network (NEoLCIN) launches new Palliative and End of Life Care website
Old NEoLCIN website will be moved to National Archives, while new site includes resource directory and new sections
Palliative and end of life care: hospital deaths 2006 to 2017
The National End of Life Intelligence Network has released a new report
National Audit of Care at the End of Life 2018 infographic
Following on from the NACEL audit, NHS Benchmarking have produced a helpful infographic to show key findings
How can we improve End of Life Care by re-imagining the CHC Fast-track process?
Slides from the event led by Professor Bee Wee and Jim Connolly on 20th February 2019
The power of personal stories
John Powell updates on the latest from the End of Life Care Network
John Powell awarded MBE
ADASS End of Life Care co-lead John Powell awarded in recognition of his service
Putting people first: See them as an individual
John Powell on progress towards Ambitions for Palliative and End of Life Care
Mental Capacity Act Study Day at St Christopher’s Hospice
Exploring the impact of the MCA in Palliative and End of Life Care
Extending people’s legal rights to personal health budgets and integrated personal budgets
NHS England and the Dept. of Health and Social Care have launched a joint consultation
Consultation on personal health budgets
Looking at extending legal rights for personal health budgets and integrated personal budgets
End of Life Care Profiles Update
New mortality data for 2016 has been added to the End of Life Care Profiles for local authorities
End of Life Care Blog
New Year update from John Powell
Thinking Ahead tool kit that family carers and/or individuals can use to plan ahead for their family members when they will no longer be around to supported them, rather than leave things to chance or statutory services to figure out
I’m Thinking Ahead is an easy read guide for people with learning disabilities that sits alongside the original Thinking Ahead guide and covers: How to plan How to make choices How to get the right housing and support Both of the guides are now also available as a downloadable pdf which…
New research: LGBT inclusivity in care homes
New research https://www.bristol.ac.uk/policybristol/policy-briefings/inclusive-care-homes/ from the University of Bristol on developing inclusive care homes for older people who identify as lesbian, gay, bisexual and trans (LGBT). The research found that care home staff and managers often lack knowledge about the delivery of personalised care to older LGBT residents. Moreover, older LGBT…
Jane Collins’ blog on Compassionate Communities
Jane Collins’ blog on Compassionate Communities, which she produced following the deep dive at the Ambitions Partnership meeting, has now been published on the Marie Curie website
Two New Transition Projects launched
Two projects launched that were made possible by funding from the Together for Short Lives’ Transition Awards Programme: ‘Expanding Worlds’ from Martin House Children’s Hospice, working in partnership with St Leonard’s Hospice ‘Futures’ from Volunteering Matters, in partnership with Acorns Children’s Hospice. You can read more about the projects here:…
A time of change, uncertainty and pressure – John Powell’s blog
As I reflect over the last year I am aware that not only have things been changing rapidly in the world of End of Life Care but also in the world at large. These are difficult and stressful times with national and international developments constantly unfolding in front of us.…